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Last updated Monday, 29 Oct 2007 18:30
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What questions should I be asking
My 3 year old son has been diagnosed
Hello Rose
What is it that you would like to know, I'll try and answer any question possible. I've been your son, I too was diagnosed at the age of 2 years old (albeit back in 1973!) Just post on here and I'll try and do my best. If in any doubt, do..
My son was diagnosed 6 weeks ago at the the age of 2 and i was just wonderin if any one had any advice..
Hello jchaffey and Hello to Ali
Guys I've been a Bi-lateral Perthes sufferer as a child. I was diagnosed in 1973 aged 2. I've had various operational procedures done, but I must warn of the dangers of operations to the femur head at the early years ..
Hi there ali,
Sorry I haven't been back in touch. I am glad I was of some help when we spoke. In fact, I am glad to say that a couple of other families have since been in touch so it was worth putting my number on here...to help others understand ..
Hi Jo, my wife and I wanted to thank you for taking the time to speak today. It has been really helpful to both of us. We know now some of the things to expect over the coming year and hopefully the right questions to ask when we see the consultant ..
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ali
23.06.2009 13:57
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Perthes in both hips
Our brave daughter
Dear C Winson
Sounds like Tilly is a brave little girl. I wish her all the best. The bonus for you is that I've heard that Stoke Mandeville Hospital has some experienced consultants there. They should help Tilly well. If you have a look around the f..
Hi, This is our story
Our daughter Tilly complained of pain in her knee and walked with a limp she also was having trouble getting out of a chair as was very stiff and seem to get stuck.
We took her to the doctors, this was when she was 5 in 2007..
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cwinson
23.09.2009 15:20
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My 7 year old son has Perthes
Hi all,
My 7 year old son has Perthes disease and he has been on a rollercoaster ride over the past 12 months. Like all of the literature says, we noticed that he had a limp and he was complaining of knee pain. So of course, I was icing his knee ..
Hello Amadsen
It's good to hear that your son, Josh is feeling a little more comfortable. Josh seems to have had a very similar operational event as I had as a child. I too, had the plate and screws once, after the operation to try and reshape the s..
Hi all,
Well it's been almost a year since my last posting and a lot has happened since then. Josh has had a relatively good year with limited pain. He still struggles with walking long distances as his leg gets very tired. His right leg is still..
hi! Sorry to hear the news about your daughter, Kelsey. Like you, our 5 year old boy was diagnosed in September 08 and we have had a very rocky ride. Ben was put onto traction last month and is now out of hospital but wheelchair and crutches bound. S..
hi! i am new to this site and perthes. its so glad to know that your boy is now pain free and enjoying running around again. my daughter kelsey was diagonised with perthes in september 08, but has mangaged on pain killers and in march we were given..
Hi all,
My 7 year old son has Perthes disease and he has been on a rollercoaster ride over the past 12 months. Like all of the literature says, we noticed that he had a limp and he was complaining of knee pain. So of course, I was icing his knee..
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amadsen
22.04.2009 08:23
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Help and advice from other parents -I am new to this
My son has recently been diagnosed
I would concur with what has been said elsewhere in these forums, that there seems to differing approaches to treatment from different consultants - here is our experience.
In November 2004, out of the blue, our son Tim, aged 4 years, had some pai..
Yes, you are right, this is a very common theme. Children are very frustrated when restricted from doing the normal things a boy enjoys particularly when they have siblings. I'm sure the swimming will help to use some energy and it will also be good..
My 8 year old son has been recently diagnosed with Perthes and we are having a very up and down time of it. I would love to hear from some parents who have been through this and might be able to offer me some advice. Having read other posts, what we ..
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ssidgwick
07.11.2008 10:40
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My experiences about Perthes disease.
[hidden]Original Message - [09/25/2008 - 02:14 PM]
[quote]Original Message - [09/25/2008 - 02:14 PM]
Hi all,
I am new here. I just found this website by chance and it looks very interesting. I would like to share my ex ..
Thank you for your story Mikel, I am sure it will encourage others who are just starting with Perthes  ..
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When I wrote, "I stopped growing up since being diagnosed with the disease. I just increased my height in 5 or 6 cm" I meant:
I almost stopped growing after being diagnosed. I didn´t grow too much betwen 8 and 13 years (beacuse of the dise..
[hidden]Original Message - [09/25/2008 - 02:14 PM]
[quote]Original Message - [09/25/2008 - 02:14 PM]
Hi all,
I am new here. I just found this website by chance and it looks very interesting. I would like to share my ex..
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mgurrea
25.09.2008 14:13
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Sleep disturbance
My 7 year old son was diagnosed with Perthes in August 07. Since his activity has been restricted and his beloved football stopped I have had great problems getting him to bed! He is no longer physically tired despite swimming and bike riding. Has ..
My seven year old son was diagnosed back in December and had an operation at Southampton General in January. He is allowed to walk now but not run or jump so has to stay in at playtime. His behaviour has got a lot worse recently - since he's been all..
I can totally relate to how both you and your daughter are feeling. we have been through everything you are describing. Each consultant seems to deal with perthes differently. Thankfully we have a great consultant. I am trying to start a local supp..
My 7 year old son was diagnosed with Perthes in August 07. Since his activity has been restricted and his beloved football stopped I have had great problems getting him to bed! He is no longer physically tired despite swimming an..
Drop me an email at admin@perthes.org.uk, if you want a letter requesting contacts or penpals in the newsletter, we can get it in December's issue if I receive it before 21st November  ..
That sounds like just what we need. Can you let me know how to leave my details etc. I am a member...
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jdent
02.11.2007 07:12
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daughter just been diagnosed
Hi all, just joined the site as my daughter Annabel (age6) was diagnosed nearly 3 weeks ago and seems to be getting worse by the week. Just wondering how many months or years generally will she be limping and in pain? Will it get worse before it ge ..
Angela
Hope this will help. My son Cameron aged 7 was diagnosed with perthes at the end of August and has now been pain free for approx 3 or 4 weeks. He has spent all of that time on crutches. His limp seems much better as well. Hope you get on ..
Hi all, just joined the site as my daughter Annabel (age6) was diagnosed nearly 3 weeks ago and seems to be getting worse by the week. Just wondering how many months or years generally will she be limping and in pain? Will it get worse before it ge..
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adixon
07.11.2007 09:40
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