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Perthes Association website


 Last updated Monday, 29 Oct 2007 18:30
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Getting Started
By: gareth
Current Rank: Starfleet Lieutenant, Junior Grade
Postings: 8
From: UK
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Posted: 10/30/2007 - 03:25 PM

These Forums are relatively easy to use and behave much the same as other Forums or online discussions boards. If you are really stuck and can't get going using the information here, email support@encryptec.net for help.

First, on order to post you will need to log in to the web site using a valid user name and password. At the moment, membership is manually validated by Perthes staff so you should email a request to admin@perthes.org.uk or put a call in to Lisa Grant.

Once you have a login id and password, click on "Home", then enter your user name and password on the right hand side of the screen, then click "log in".

Now click on "Forums".

Select the Forum you would like to put a comment on.

Now either select "Add new topic" from the top of the listing, or go to an existing comment an scroll down. In either instance you should see an entry box containing an editor.

Type your message into the box .. you can apply some basic formatting using the toolbar shown at the top of the editor, or you can insert "smileys" by clicking on the little yellow faces below the editor. Cool! (note that these show as :something: in the editor, but will convert to pictures when you click save)

When you're done, click on the "Preview" button, this will let you see what your entry will look like when you actually save it. You may now either continue to edit / correct, or you can click save to submit your entry to the Forum.

Assuming you can get this far, if you have questions, please post them to the 'General Discussion' forum.
By: jchaffey
Current Rank: Starfleet Ensign
Postings: 4
From: n/a
Posted: 05/11/2009 - 08:29 PM

Being new to the Association, I am not entirely sure how this works! However, our son was diagnosed with Perthes last Summer and is currently reliant on crutches and his wheelchair. He is 5 years old and extremely frustrated with his limitations at the moment. It would be lovely to hear from people who are experiencing a similar situation and I know our Ben would value some 'company' from fellow Perthes children. It is probably not advisable to leave a 'phone number, but we live in Taunton, Somerset and would love to hear from anyone (especially in the area) who would like to meet up. Jo Smile!
By: lporsi
Current Rank: Starfleet Ensign
Postings: 1
From: England
Posted: 06/09/2009 - 10:13 AM

Hello all, If anyone can help me with any advise or point me in the right direction would be such a great help. My 17yr old daughter has been diagnosed with Perthes. After visiting my GP and then a consultant when she was 13 with concerns over a noticeable difference in leg length and back pain, my consultant concluded that there was a difference in length but it was superficial and "one of those things". Now at 17 a trainee consultant recommended an x ray the outcome being Perthes. There is a 4cm difference in length which nothing can be done about apart from Lifts in her shoe, of course Lifts of this height leave her foot sat on top of the shoe not in it! She also suffers from chronic back pain and Hip pain after any prolonged time standing or walking. We have been sent away with no information and no further tests have been offered to determine the damage already sustained to the hip, or what her future prospects are. I am trying to find a consultant within the Midlands area who specialises in Perthes among older children (she is still a little girl to me) and can perform a more detail examination as I have other concerns with over all bone development. Any help at all will be great even advice on the best type of mattress for relieving pressure from her hip.
By: lisa
Current Rank: Starfleet Lieutenant, Junior Grade
Postings: 13
From: n/a
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Posted: 06/14/2009 - 01:30 AM

From: lporsi
Hello all, If anyone can help me with any advise or point me in the right direction would be such a great help. My 17yr old daughter has been diagnosed with Perthes. After visiting my GP and then a consultant when she was 13 with concerns over a noticeable difference in leg length and back pain, my consultant concluded that there was a difference in length but it was superficial and "one of those things". Now at 17 a trainee consultant recommended an x ray the outcome being Perthes. There is a 4cm difference in length which nothing can be done about apart from Lifts in her shoe, of course Lifts of this height leave her foot sat on top of the shoe not in it! She also suffers from chronic back pain and Hip pain after any prolonged time standing or walking. We have been sent away with no information and no further tests have been offered to determine the damage already sustained to the hip, or what her future prospects are. I am trying to find a consultant within the Midlands area who specialises in Perthes among older children (she is still a little girl to me) and can perform a more detail examination as I have other concerns with over all bone development. Any help at all will be great even advice on the best type of mattress for relieving pressure from her hip.


Not sure of Mr O'Hara at Birmingham children's Hospital could help being as she is 17, I'm not sure if she still comes under paediatric orthopaedic care, but it's worth a try, and he's very good. Your daughter will have had Perthes as a child and what she has now is as a result of it being untreated, so not Perthes disease as such but a deformed head of femur as a result of having had Perthes disease.
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