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By:
jfoster
Current Rank:
Starfleet Lieutenant, Junior Grade
Postings:
8
From:
n/a
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Posted:
06/05/2010 - 05:41 PM
This is my first ever post on this forum for the Perthes Organisation, so bear with me.
I've been a Bi-Lateral Perthes suffer as a child, but now an adult. I was first diagnosed in 1973 at the age of 2 years old. I've much experience with living with this condition and what can happen later in life. Unfortunately, after Perthes, comes Osteo-Arthritis. I have Osteo-Arthritis in my neck,spine, knees and right hip (left hip was replaced due to collapsing). My right hip has also now collapsed, but I'm holding off getting this replaced for as long as possible. My left hip is stable, but worn out nearly, again I'm trying to prolong a revision on this hip. I'm now a semi-wheelchair user, in severe pain and very disabled by the after effects of Perthes.
Try as much as you can to lead a normal life as possible for any child that is diagnosed with this condition. But, try also to encourage them to do more passive hobbies, play and exercise. I also suggest in the thought of preservation of the rest of the skeleton of the child's body, that they try not do sports, except swimming and cycling. The rest of the sports have far too much an impact on the skeleton. Try to bear in mind that the child will, without thinking about, compensate by walking and weight bearing, shift their weight to the side that is less painful. This is natural for the human body. But, this can in later life cause problems to the skeleton not effected by Perthes.
Try to encourage you child to do more with the mind, rather than what everyday children are doing, remember the impact through the skeleton when walking is a least double the body weight and running it is far greater (upto 10x body weight) of force.
As your child grows up, again try to encourage them to pursue a career that is not strenuous, it would be a real benefit later in life.
As for pain killers at other medication, there is a lot of things to bear in mind, one example that has happen to me is:- the long term use of NSAID's(non steroidal anti inflammatory drugs) i.e. Aspirin based have stripped my stomach lining and caused ulcerations to my stomach and lower duodenum. They have also caused very high blood pressure.
I'll try to add more experiences as I get time. I'll also try to answer other people who post on this forum any questions.
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